Research and Training Center on Disability Statistics and Demographics
(StatsRRTC) will host the State of the Science Conference on April
23, 2012 at the Hyatt Regency Hotel (One Bethesda Metro Center, 7400 Wisconsin
Avenue) in Bethesda, MD. This conference will appeal to all disability
researchers, disability program staff, policy leaders, and community advocates.
Conference participants will learn more about both the current state of
disability statistics and the future advancement of the field.
The keynote address will be given by Dr. Charles Lakin,
Director of the National Institute on Disability and
The Community of Practice on Employment Research of the Center
on Knowledge Translation for Employment Research (KTER Center) will host a
webcast titled What Counts? Latest
Disability Statistics from Federal Surveys and Resources from 3:00 pm –
4:30 pm (EST) on Wednesday, January 25, 2012. This webcast will appeal to all
researchers, particularly those interested in employment-related disability
The 90-minute webcast will be hosted by Dr. Andrew
Houtenville, Research Director of the Institute on Disability at the University
of New Hampshire. Dr. Houtenville will discuss the November 2011 Annual Disability Statistics Compendium
published by the Rehabilitation Research and Training Center on Disability
Statistics and Demographics.
Click here for
registration and here to
test your computer prior to the webcast.
If you cannot attend this webcast, please visit this
page for the post-webcast archive.
Each month, members of the White House Domestic Policy Council and Office of Public Engagement who work on disability issues host a public, live-captioned conference call to keep citizens better informed of important disability issues and to connect them to the leaders who work on disability policies in the federal government.
Following is information for the January call:
Date of Call:Wednesday, January 18, 2012
Start Time: 2:00 p.m. EST (dial in 5 minutes early). This call will probably last 1.5 hours.
Dial in:(800) 762-4758
Code: “White House Disability Call”
Note: This call is off the record and not for press purposes.
Email firstname.lastname@example.org with your name, organization, city and state to be added to the White House Disability Group email distribution list.
Click here to learn more about the White House monthly disability calls.
The New York Times recently featured the work of the Virginia Commonwealth University’s Traumatic Brain Injury Model System (VCU-TBIMS) team in the article “When Injuries to the Brain Tear at Hearts.”
The article discusses the work of Jeffrey S. Kreutzer, PhD; Emilie Godwin, PhD; and associates at VCU-TBIMS in developing novel evidence-based counseling methods for married couples in which one spouse has sustained a TBI. As the notable case of Representative Gabrielle Giffords shows, the marital strains associated with TBI extend far beyond the immediate demands of caring for a spouse’s physical injuries. The additional psychological burdens placed on the supporting spouse can be exceedingly difficult to overcome.
Click hereto access the full story and learn more.
Study Title: A New Measure of Subjective Fatigue in Individuals with Traumatic Brain Injury
Introduction: Fatigue (a feeling like you are often physically and/or mentally exhausted) is an issue for many people who have had a traumatic brain injury (TBI). Our previous research into health related issues after brain injury have shown that fatigue is related to problems with emotional, social participation, physical/fatigue, and cognitive or thinking challenges.
Purpose of this Study: The goal of this study is to evaluate a newly developed TBI-related fatigue questionnaire.
What Happens During this Study: After an initial collection of demographic information is complete, you will be asked to participate in one interview (that will involve several assessments or questionnaires). The demographic information collected will include things like age, education level, living and working status, and medical history. The initial collection of demographic information, which may be done at Santa Clara Valley Medical Center or by telephone, will be followed by the interview. Each interview is approximately 1 hour long and may be done at your convenience. The interview is made up of multiple choice questions related to fatigue and other health-related quality of life areas.
Compensation: You will be paid $25 for participating in the interview.
Potential Risks and Discomfort: There are no known risks associated with your participation in this study. Discomfort may be experienced only to the extent that some of the questions may be of a more personal nature and that the interview may require up to 60 minutes of your time. You may withdraw at any time.
Who is Eligible to Participate: You must have had a traumatic brain injury (i.e. hit on the head, concussion, knocked out) that required you to seek medical attention. Mild, Moderate and Severe Injuries are all included in this study. Further, you need to wait at least six months after your brain injury to start this study. You must be 18 years or older. You need to be able to understand and communicate in English. You must be able to provide documentation of your injury. Informed consent and HIPPA forms will be mailed to you to complete.
Who is Sponsoring this Study: The National Institute on Disability and Rehabilitation Research, U.S. Department of Education.
Who is Responsible for this Study: Jeffrey Englander, MD Santa Clara Valley Medical Center